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Suneel's Light Foundation's 'Night to Shine' charity event to help discover cure for Duchenne muscular dystrophy


Fri, Oct 27th 2017 03:20 pm
Charity event set to shine brightly on Park Country Club Nov. 4
Suneel's Light Foundation has announced the "Night to Shine" charity event, the research foundation's 2017 fundraiser, will "shine brightly" upon Park Country Club, 4949 Sheridan Drive, Williamsville, from 6-9:30 p.m. Saturday, Nov. 4, in the club's storied ballroom.
The local nonprofit foundation has the sole mission of raising funds for genetic research that will lead to a cure of Duchenne muscular dystrophy (DMD) and to increase public awareness of the genetic disorder.
The charity event's honorary chairs are Congressman Chris Collins and his wife, Mary Sue, because they both have been champions to advance medical treatments for diseases such as Duchenne. While doing so, have saved thousands of lives and given millions a better quality of life. Collins also fought for passage of the 21st Century Cures Act, landmark medical innovation legislation that directly benefits the lives of Western New Yorkers and those across the country by accelerating the discovery, development and delivery of new and life-altering treatments by easing the requirements put on drug companies looking for FDA approval on new products or new indications on existing drugs.
Suneel's Light's "Night to Shine" invites the community to enjoy a unique evening featuring three of the region's top distilleries, including Southern Tier, Buffalo Distilling Co. and Lakeward Spirits, which will be competing for the best "signature cocktail" of the evening. Attendees will vote on and winner will be announced at the end of the charity event.
Guests will be able to spend an evening mingling with community leaders and world-renowned advocates and researchers from across the globe who are on the front lines advancing treatments for Duchenne. The evening will also include the opportunity to mingle with local celebrities from the worlds of science, media, sports, entertainment and politics, while enjoying fare and cocktails as live music fills the ballrooms with light, classical favorites.
"Night to Shine" will feature benefit auctions with items from both the Buffalo Bills and Buffalo Sabres, as well as numerous items from some of Western New York's favorite restaurants, shops and companies. The event will conclude with a professional auctioneer holding a live auction of fabulously unique auction items. Attendees will also be able to participate in a first-class silent auction and a raffle for themed packages, such as technology, sports and wine, etc.
All proceeds from the entire event going toward finding treatments and a cure for DMD. Tickets for the event are $100 per person. For more information on the 2017 "Night to Shine," or to purchase tickets or make a donation, visit www.suneelslight.org or call 716-243-0882.
Established in 2002, Suneel's Light is a charitable foundation whose namesake is a young man from Amherst who lives with DMD. The foundation was established to fund critical research for treatments in search of a cure for Duchenne, the most lethal genetic childhood disease, which targets mainly young boys, without regard to ethnicity, and leads to death from respiratory or heart failure by their early 20s. Without a breakthrough in ongoing medical research and treatment, there is little hope Suneel and other children like him will live to adulthood.
At present, more than 20,000 children in the U.S. suffer from this fatal disease, with more than 100,000 worldwide, with a statistically higher number of identified cases in Western New York than the national average.
For more information about Suneel's Light or Duchenne muscular dystrophy, visit www.suneelslight.org or www.facebook.com/suneelslight.

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