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Down syndrome fundraiser at Porter on the Lake

by jmaloni
Sat, Jun 28th 2014 12:30 am

by Allison Deutschman

Come to Porter on the Lake, Dietz Road in Youngstown, for a great "Sunday fun day," July 13, to raise money for The Family and Friends Down Syndrome Association of Niagara.

"Turn It Up for Down Syndrome: A Concert in the Park" will provide music courtesy of the "Summer of '69" band and Universal Mind, delicious treats, child entertainment, a silent auction and more, from noon until 5 p.m. Participants can enjoy bounce houses, children's games, dance lessons, face-painting, Lakeview Animal Sanctuary and petting zoo, a parachute pull, a playground and the Sweet Treats Ice Cream truck.

A Krolick's chicken barbecue dinner will be available from 1-3 p.m. for $10.

This fundraiser is an important event locally, to help increase general knowledge about Down syndrome and to raise money for The Family and Friends Down Syndrome Association of Niagara.

In the U.S., there are more than 400,000 people living with Down syndrome, according to www.dsaniagara.org. The cost of open-heart surgery for many people born with Down syndrome is extremely high and unavailable locally.

Families and friends of those impacted by the condition as well as the general public are encouraged to attend the concert and learn more while enjoying the entertainment.

"We continue to strive to raise positive awareness about people born with Down syndrome and promote their value and inclusion in society," said Christine Sirianni, parent advocate and president of the local affiliate.

For tickets, contact Sirianni at 716-870-4904 or Debbie Fleck at 716-870-1109. The parking fee is $3.

Minors must be accompanied by a parent/guardian and alcohol is not permitted.

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