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Connor O'Keefe benefit at Lewiston Event Center

by jmaloni


Fri, Nov 14th 2014 05:05 pm

•Friends and family of Connor O'Keefe, pictured, have announced plans for a fundraiser from 6 to 11 p.m. Saturday, Nov. 15, at the Lewiston Event Center, 845 Cayuga St.

Connor is the 13-year-old son of Sean O'Keefe, a Lewiston-Porter graduate, now a Pepsi employee living on in Sarasota, Florida. At a very young age, Connor was diagnosed with a degenerative neurological leukodystrophy, also known as 4H syndrome.

The disease attacks all major motor functions of the body, because of the lack of myelin in the brain. Myelin acts as insulation to the nerve cells that sends signals from the brain to the body. His disease is a progressive degenerative disease, whereas there will not be enough myelin for Connor as his body grows.

Connor could crawl, talk, eat, swallow and hold his head up. He can now no longer do any of these things and is completely dependent on a feeding tube for nourishment.

When Connor gets sick, even with a common cold, he has to be admitted into the hospital for an extended time, resulting in an accumulation of high medical bills. Money from the fundraiser will be used to help offset these medical bills and provide financial support to the O'Keefe family.

The event will be hosted by Connor's aunt, Maureen Gambino O'Keefe, along with Andrea Simler-DeGolier. Saturday's fundraiser will feature Music by Rock Angel, Kama Sutra (acoustic) and County Orphanage, along with bowling, food and a cash bar.

"We appreciate any amount you are able to donate," Simler-DeGolier said. "Please help us to spread the word about our efforts to support Connor and his family."

For more information, visit www.youcaring.com/medical-fundraiser/every-little-bit-counts/198349 or search for Caring for Connor O'Keefe/A Benefit Event on Facebook.

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