Alexandra Elizabeth Hayes, the 9-year-old granddaughter of Beverly Hayes and niece of Louis Antonacci, is in need of your help.
Alex was diagnosed with Angelman syndrome, a neuro-genetic disorder that occurs in only 1 in 15,000 live births. The syndrome is often misdiagnosed as cerebral palsy or autism. Characteristics include: developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome require life-long care.
To help offset her family's medical costs, a fundraiser for Alex has been set for Saturday, March 19, at Frontier Volunteer Fire Co., 2176 Liberty Drive, Niagara Falls. The event begins at 5 p.m. and features live music by the Bob Volkman Band, a basket auction, a 50-50 split raffle, and refreshments and food.
Admission is $20 and includes 25 basket auction tickets.
Moreover, $5,000 in cash will be awarded at 8 p.m. in the form of two $500 prizes, two $250 prizes, 10 $150 cash prizes, and 10 $100 cash prizes. $50 raffle tickets provide 25 chances to win.
For more information, contact Beverly Hayes at 284-4645 or Louis Antonacci at 804-3271 or 791-4066.
Checks may be made payable to Hayes. Funds will be used for a special benefit account.
Donations may be dropped off at the Como Restaurant, 2220 Pine Ave., Niagara Falls.
For more information, or to learn more about Alex and her family, visit www.ourlifewithalex.blogspot.com.